What r/MCAS is talking about this week

there is not a single specialty that actually includes MCAS like, what do you mean there's just ENTIRE DISEASES out here that fall under no specialty?? In my area immunologists and allergists...

TL;DR: Needed 6 EpiPens. Was told I'm psychosomatic and "not their problem," made to drink water until I reacted, told not to come back, and discharged with nothing. After my last anaphylaxis (4...

TL;DR: Near-fatal anaphylaxis, now can't eat and can barely drink, discharged without a plan, waiting months for immunology. Has anyone been this bad and recovered? How did you get through the...

POTS, MCAS, EDS trifecta here 🙋‍♀️ What the actual heck is happening when you get that feeling as though the world isn’t real, you’re detached somehow and almost in a dream and walking through...

I’ve heard long MCAS and ME/CFS is due to mitochondrial dysfunction. Is that true? And if so, is there anything that could reverse that? Or are there any meds or supplements to help reduce the...

I was clinically diagnosed by an immunologist with MCAS in January 2025. I've recently started seeing a functional medicine doctor who recognized my symptoms as characteristic of Babesiosis - a...

A while ago, I wrote about how I had seen a specialist at a clinic that treats mastocytosis and—evidently—mast cell activation syndrome (MCAS). And my fear about the possibility to be made fun of....

(Old post from three years ago): Sudden flushing with dread - carcinoid syndrome? MCAS? Hello there! I’m new to Reddit in general. This is my first post on this subreddit. My mum (60F, type 2...

Are hormone changes a massive trigger for anyone else? I used to think it was all PMDD and hormonal migraines but really dialed in on every signal my body was giving me. While it’s been really...

Hello all, Just wanted to hop on here and share some small positive news😊within the past years I started experiencing severe MCAS symptoms. I often couldn’t catch my breath to the point where I...