{ "subreddit": "r/MCAS", "page": "https://redlisten.com/r/mcas", "updated": "2026-11-11T05:59:54.240Z", "members": 60413, "activity": { "posts_last_24_hours": 39, "posts_per_hour": 1.7, "comments_per_hour": 19.2, "newest_post_utc": 1794376566.484, "newest_comment_utc": 1794374300.139 }, "top_threads_this_week": [ { "title": "This is not new but I am never not shocked that I have an entire debilitating disease that is NO ONE's responsibility in the medical field -- VENT", "score": 434, "comments": 242, "created_utc": 1793919834.426, "snippet": "there is not a single specialty that actually includes MCAS like, what do you mean there's just ENTIRE DISEASES out here that fall under no specialty?? In my area immunologists and allergists...", "url": "https://www.reddit.com/r/MCAS/comments/1xox45v/this_is_not_new_but_i_am_never_not_shocked_that_i/" }, { "title": "FOLLOWUP to my recent post: 6 EpiPens, then the ER made me drink water to \"see if I'd react\" and told me not to come back", "score": 155, "comments": 99, "created_utc": 1794160215.443, "snippet": "TL;DR: Needed 6 EpiPens. Was told I'm psychosomatic and \"not their problem,\" made to drink water until I reacted, told not to come back, and discharged with nothing. After my last anaphylaxis (4...", "url": "https://www.reddit.com/r/MCAS/comments/1xr4dn1/followup_to_my_recent_post_6_epipens_then_the_er/" }, { "title": "Nearly died. 4 EpiPens and the shock room, now reacting to water and lost all my safe foods. Did anyone get better from this point?", "score": 139, "comments": 130, "created_utc": 1794099049.09, "snippet": "TL;DR: Near-fatal anaphylaxis, now can't eat and can barely drink, discharged without a plan, waiting months for immunology. Has anyone been this bad and recovered? How did you get through the...", "url": "https://www.reddit.com/r/MCAS/comments/1xqlp2l/nearly_died_4_epipens_and_the_shock_room_now/" }, { "title": "Walking through water feeling??!?", "score": 85, "comments": 33, "created_utc": 1794001041.377, "snippet": "POTS, MCAS, EDS trifecta here 🙋‍♀️ What the actual heck is happening when you get that feeling as though the world isn’t real, you’re detached somehow and almost in a dream and walking through...", "url": "https://www.reddit.com/r/MCAS/comments/1xpoxf1/walking_through_water_feeling/" }, { "title": "Do we have mitochondrial dysfunction?", "score": 79, "comments": 120, "created_utc": 1794175133.333, "snippet": "I’ve heard long MCAS and ME/CFS is due to mitochondrial dysfunction. Is that true? And if so, is there anything that could reverse that? Or are there any meds or supplements to help reduce the...", "url": "https://www.reddit.com/r/MCAS/comments/1xracdq/do_we_have_mitochondrial_dysfunction/" }, { "title": "New diagnosis changes everything", "score": 74, "comments": 38, "created_utc": 1794199515.048, "snippet": "I was clinically diagnosed by an immunologist with MCAS in January 2025. I've recently started seeing a functional medicine doctor who recognized my symptoms as characteristic of Babesiosis - a...", "url": "https://www.reddit.com/r/MCAS/comments/1xrimg3/new_diagnosis_changes_everything/" }, { "title": "My fear of being gaslighted actually came true", "score": 73, "comments": 68, "created_utc": 1793894279.01, "snippet": "A while ago, I wrote about how I had seen a specialist at a clinic that treats mastocytosis and—evidently—mast cell activation syndrome (MCAS). And my fear about the possibility to be made fun of....", "url": "https://www.reddit.com/r/MCAS/comments/1xoma5w/my_fear_of_being_gaslighted_actually_came_true/" }, { "title": "Update after 3 years! Thank you to this community", "score": 67, "comments": 7, "created_utc": 1793812144.417, "snippet": "(Old post from three years ago): Sudden flushing with dread - carcinoid syndrome? MCAS? Hello there! I’m new to Reddit in general. This is my first post on this subreddit. My mum (60F, type 2...", "url": "https://www.reddit.com/r/MCAS/comments/1xntpql/update_after_3_years_thank_you_to_this_community/" }, { "title": "Hormone changes as a major trigger", "score": 64, "comments": 51, "created_utc": 1793875004.038, "snippet": "Are hormone changes a massive trigger for anyone else? I used to think it was all PMDD and hormonal migraines but really dialed in on every signal my body was giving me. While it’s been really...", "url": "https://www.reddit.com/r/MCAS/comments/1xoffmx/hormone_changes_as_a_major_trigger/" }, { "title": "Small celebration moment!", "score": 51, "comments": 21, "created_utc": 1794011195.839, "snippet": "Hello all, Just wanted to hop on here and share some small positive news😊within the past years I started experiencing severe MCAS symptoms. I often couldn’t catch my breath to the point where I...", "url": "https://www.reddit.com/r/MCAS/comments/1xpspkp/small_celebration_moment/" } ], "newest_posts": [ { "title": "Dreading that week before my period already", "score": 1, "comments": 1, "created_utc": 1794376566.484, "url": "https://www.reddit.com/r/MCAS/comments/1xta0l1/dreading_that_week_before_my_period_already/" }, { "title": "Feeling lost", "score": 1, "comments": 0, "created_utc": 1794372360.67, "url": "https://www.reddit.com/r/MCAS/comments/1xt8qs3/feeling_lost/" }, { "title": "Need toothpaste options without these ingredients??", "score": 1, "comments": 1, "created_utc": 1794371126.856, "url": "https://www.reddit.com/r/MCAS/comments/1xt8dch/need_toothpaste_options_without_these_ingredients/" }, { "title": "MCAS Treatment question", "score": 1, "comments": 1, "created_utc": 1794369926.06, "url": "https://www.reddit.com/r/MCAS/comments/1xt7zmo/mcas_treatment_question/" }, { "title": "reacting to everything?", "score": 1, "comments": 1, "created_utc": 1794369503.825, "url": "https://www.reddit.com/r/MCAS/comments/1xt7unv/reacting_to_everything/" }, { "title": "Acne scars?", "score": 1, "comments": 1, "created_utc": 1794367628.792, "url": "https://www.reddit.com/r/MCAS/comments/1xt78o6/acne_scars/" }, { "title": "GI problems after ketotifen?", "score": 1, "comments": 1, "created_utc": 1794367389.245, "url": "https://www.reddit.com/r/MCAS/comments/1xt75te/gi_problems_after_ketotifen/" }, { "title": "Finally diagnosed today! 💃", "score": 1, "comments": 1, "created_utc": 1794366871.957, "url": "https://www.reddit.com/r/MCAS/comments/1xt6znx/finally_diagnosed_today/" }, { "title": "Tell me all about Xolair, the good, the bad, everything in between!", "score": 1, "comments": 1, "created_utc": 1794366191.328, "url": "https://www.reddit.com/r/MCAS/comments/1xt6rda/tell_me_all_about_xolair_the_good_the_bad/" }, { "title": "Anyone with Central Sleep Apnea?", "score": 1, "comments": 1, "created_utc": 1794366054.633, "url": "https://www.reddit.com/r/MCAS/comments/1xt6pmk/anyone_with_central_sleep_apnea/" } ], "words_this_week": [ { "word": "flare", "titles": 12 }, { "word": "ketotifen", "titles": 10 }, { "word": "cell", "titles": 8 }, { "word": "reactions", "titles": 8 }, { "word": "taking", "titles": 7 }, { "word": "water", "titles": 6 }, { "word": "diagnosis", "titles": 6 }, { "word": "everything", "titles": 6 }, { "word": "tolerate", "titles": 6 }, { "word": "mast", "titles": 6 }, { "word": "eating", "titles": 6 }, { "word": "even", "titles": 6 } ], "preview": "This is a preview. Every post and comment in r/MCAS, live, as JSON or RSS on the same paths a Reddit client uses, plus keyword streams to Slack, Discord, webhook or email, needs a free key: https://app.redlisten.com/?signup=1&utm_source=redlisten&utm_medium=subreddit", "docs": "https://redlisten.com/docs", "attribution": "Source: Redlisten, https://redlisten.com/r/mcas" }