- How do you survive inside an MRI machine? šµāš«
I absolutely hate MRI scans. I have to go through one at least twice a year, and each scan usually takes around 90 minutes. They put this cage over my head, slide me inside the machine, and I'm...
139 points402 comments3 d ago
- Did it lower your intelligence/ability to think?
I went from top of class to very low IQ after being diagnosed. I wonder if it happened to someone else, too?
122 points105 comments7 d ago
- I've stopped torturing myself over painkillers.
I don't know if this will resonate with anyone. Regarding chronic pain and its medication. I've needed pain management for a long time, even prior to MS diagnosis. So I've had the cautionary...
112 points23 comments4 d ago
- Mentally done.
Today Iām fighting with the thought of would my family just be better off if I wasnāt here. Just got the feeling of Iām just a burden to them at this point. Today I was walking with my daughtersā...
95 points27 comments4 d ago
- Iām 26 with MS and just got shingles.
Iām a 26-year-old male with Multiple Sclerosis (MS), and I just found out I have shingles. I genuinely had no idea this was even something I needed to worry about at my age. I always thought...
57 points54 comments2 d ago
- Has anyone else become incredibly sensitive - to smells, VOCs, random things?
I am so angry at how sensitive Iāve become to simply living life. An air b and b had a scent thing installed and it made me feel so sick. I just tried to put a new rug in my room and it made me...
56 points35 comments4 d ago
- āCrap Gapā HOPE!!!
Okay- for anyone familiar with the ācrap gapā on the b-cell depleting therapies, particularly Ocrevus and Ocrevus Zunovo: My neurologist has been tracking my Octave scores for the last year(ish)....
55 points26 comments1 d ago
- "Men become more disabled"
I've heard time and time again that men usually become more disabled from MS than women. I can't help but feel a bit concerned when I hear that considering that I am a man. Of course I know that...
53 points71 comments21 h ago
- Does anyone experience since being diagnosed, feeling overwhelmed by too much noises and things going on?
I used to never have a problem with crowds but now when Iām tired I canāt focus or handle it, it makes me feel so stressed. I canāt handle the amount of sounds I used to. Itās weird to me
52 points28 comments7 d ago
- This is real
Just wanted to quickly rant Iām coming up on 2 years of my MS diagnosis and Iām just sitting here today thinking to myself that this is really real. Itās been real too me Iāve been taking it...
51 points18 comments11 h ago