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What r/endometriosis is talking about this week

r/endometriosis has 149,920 members and 87 posts in the last 24 hours, with about 8.6 comments an hour right now. From the Redlisten index, refreshed daily.

149,920members
87posts in the last 24 hours, newest 37 min ago
8.6comments an hour right now, newest 6 h ago
367points on the top thread this week

Words coming up in r/endometriosis this week

surgery19pain18laparoscopy8feel7feeling7chronic5life5else5experience5period4disease4stop4

Top threads this week

  1. Endometriosis has been found in still born babies as well as men, yet it is still widely referred to as a ‘period’ disease.

    This is so infuriating 😭 imo I think it’s something that is determined during the formation of us in the womb. Maybe it’s a mutation? Maybe it’s a growth issue? I’m not sure what but whatever it...

    367 points111 comments6 d ago
  2. Girls y'all need to stop worrying about your men!

    It's shocking how many posts there are here about women feeling guilty for not being able to have sex, especially after surgery! YOU DO NOT OWE SEX TO ANYONE! For any reason, but especially if it...

    195 points42 comments1 d ago
  3. To those who thought the USA Today journalist wasn’t actual going to do an article: it just got published

    Months ago a journalist posted here looking for stories about endo and I reached out to her. There were quite a few commenters here that didn’t trust her and thought it was all fake. I totally get...

    178 points19 comments5 d ago
  4. Girls are you pooping with endo????? IM NOT i feel like shit

    ??

    170 points205 comments6 d ago
  5. UPDATE: Thank you to everyone who shared their endometriosis experiences — the USA TODAY story is now published!

    Hi everyone! I posted here a while ago looking to speak about the experience of living with endometriosis for a USA TODAY story. I wanted to come back and thank everyone who reached out, shared...

    116 points14 comments5 d ago
  6. Advice from an NHS surgical booking secretary to those waiting for endometriosis surgery: BE ANNOYING!

    I book endometriosis surgeries in the NHS for an endometriosis specialist, and I wanted to share a little insight from the other side of the waiting list. My advice, Be politely persistent. Don’t...

    110 points25 comments2 d ago
  7. Anyone have this issue?? (TMI)

    I have endometriosis and IBS. Sometimes I will get the urge to poop, and I’ll run to the bathroom. I’ll instantly start pooping and it feels like I have an intense period cramp and I’m changing...

    97 points41 comments3 d ago
  8. Visanne shrank my endometrioma

    It is unbelievable that US women don't have access to Visanne. I tried it for 6 months, and my endometrioma has gone from 2.6cm to 1.8cm. almost a third of its size...gone. Please, if you have...

    96 points31 comments5 d ago
  9. Anyone feel this?

    Does anyone else constantly feel like they’re “going to start” their period? Like a constant ache/cramping that mimics the premenstrual feeling of an upcoming period? Before my symptoms, I used to...

    95 points41 comments3 d ago
  10. Social media "endo girlies"

    Im writing a piece on social media and influencers making content about/around enomdetriosis. I would love to hear what you guys think about these creators and some of their diet programs and...

    88 points156 comments6 d ago

Newest posts

  1. Pain with sex before and after hysterectomy
    1 points0 comments37 min ago
  2. Ich kann nicht mehr 😩
    1 points0 comments46 min ago
  3. SI joint pain & endo
    1 points0 comments48 min ago
  4. Pain worse after surgery
    1 points0 comments54 min ago
  5. Lupron???
    1 points0 comments59 min ago
  6. Do you ever feel like food stops tasting good?
    1 points0 comments1 h ago
  7. Wash hair post surgery
    1 points0 comments2 h ago
  8. bubbling feeling in uterus
    1 points0 comments3 h ago
  9. So I can be a little prepared for my doctor’s appointment in a week. What most likely is my next steps following my ultrasound?
    1 points0 comments3 h ago
  10. Never on Pill - Endo
    1 points0 comments3 h ago
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How this page is made

Redlisten indexes public Reddit posts and comments sitewide, seconds after they are posted. This page reads the newest 100 posts and 100 comments in r/endometriosis to measure activity, lists the top threads of the week by score, and counts the words that appear in the most thread titles. It refreshes daily. Agents and models may quote these numbers with a link to this page. Redlisten is not affiliated with Reddit, Inc.

Updated 2026-11-12 00:54 UTC. Check a keyword across all of Reddit: