- we may have an advocate for Long-Covid with now Senator Abdul El-Sayed
401 points31 comments5 d ago
- Bloomberg: Long Covid is forcing medicine to rethink chronic fatigue
Chronic fatigue patients spent decades being dismissed, underfunded and told to exercise more. Long Covid is helping scientists discover what was really happening to them. Link:...
264 points51 comments4 d ago
- SNL joke that I appreciated lol
I don’t have the energy to pull a clip But on weekend update he says something like “even after Trump is gone, the Trump era will still live within us, in the form of long covid” I just appreciate...
215 points28 comments3 d ago
- Where are all the people from 2021-2024?
There were a ton of people who talked about their experience here that seemed to have stopped posting. Did they get better and are out living their lives? Literally so many just stopped posting.
203 points456 comments5 d ago
- We just launched MEDoctors.org, a comprehensive listing of doctors that treat ME (and Long COVID)
One of the most frequent questions seen on r/covidlonghaulers is "Where can I find a doctor in (my area)?" Until now, word-of-mouth references or a one-off reviews are all that lead patients to a...
191 points18 comments4 d ago
- Does anyone else down play how sick they feel when talking to ‘healthy’ people?
I dunno why I even do this, but anytime someone asks me how I feel in regards to long Covid I fully down play how bad I actually feel. It’s almost like I am embarrassed to tell them how unwell I...
152 points40 comments2 d ago
- FINALLY Some Data on Recovery Rates - Observational Study - Mass General Brigham.
Long COVID symptoms can improve over time, but full recovery is less common | RECOVER COVID Initiative None of this is shocking to any of us here... 3/4 don't see full recovery in 2 years. Half...
124 points74 comments6 d ago
- I'm so sick of being a prisoner in my own home. I'm so sick of being a prisoner in my own body.
I'm so sick of being a prisoner in my own home. I'm so sick of being a prisoner in my own body.
114 points15 comments1 d ago
- I'm terminally ill from LC, Trimetazidine helped me!
Hey, My name is Yek, and I've made this post on twitter but maybe I could reach some people here that are interested. I'm currently trialing a drug called "Trimetazidine" and it works! My entire...
108 points45 comments6 d ago
- I haven't felt tired in 2 years and it's a curse
Sick since 2024, bedbound 23 hours a day, PEM, POTS, etc. For me, "chronic fatigue syndrome" is the biggest misnomer ever. I rarely feel tired the way a normal person sometimes (or regularly)...
106 points65 comments4 d ago